The Wonderbox Project: Creative Interventions, Artful Caregiving, and the Impact on Families with Medically Complex Children

The Wonderbox research project was the product of a creative health collaboration between the Edson College of Nursing and Health Innovation and the Herberger Institute for Design and the Arts at Arizona State University, as well as the Childsplay AZ theater in Tempe, Arizona. This ongoing project began in the summer of 2021. It was funded by the National Endowment for the Arts, and IRB approval was obtained for the project. Each participant signed informed consent documents prior to the start of the survey and the intervention. This research project aimed to explore ways in which stress can be alleviated in parents and caregivers who have medically complex children using creative play and interactive theater interventions. This study used surveys to determine how the Wonderbox activities impacted the perceived stress, well-being, overall family functioning, and quality of life of parents who have medically complex children. This study consisted of parents or caregivers of children between the ages of 6 and 17 with any type of medical complexity who spoke English. There were 31 families who participated in this study. The family APGAR (family functioning), perceived stress scale, quality of life evaluation, and the WHO-5 well-being index were measured before and following the intervention. The quality of life evaluation post-test measure was shown to be statistically significant, and the perceived stress increased but was not statistically significant. The Family APGAR had no change. In qualitative results, only five families reported their results in ClassDojo, and there was no communication between the researchers and the parents of these children. Overall, the study was successful in significantly improving quality of life and caused no harm to the participants in other areas of evaluation. Future studies should consider broadening the size of the population of the next cohort, as well as promoting better communication among these families to obtain more qualitative results.